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Beating the Odds


Lisa Tamati has lived her life beating the odds, never letting anything stand in her way.

 

 

So when an aneurysm and stroke left Lisa’s mum Isobel with severe brain damage at the age of 74, the ultramarathon runner approached rehabilitation in the same way she approached some of the world’s most gruelling races.

She tells Melinda Collins about the unrelentless love for her mum which saw her beat the odds once again.

Lisa Tamati never pegged herself as a runner.

An asthmatic her whole life, she simply didn’t have the lung capacity.

But she came from a sporty family and wanted to make her dad proud, so she trained instead, as a gymnast.

“I failed at that miserably,” she laughs. “I wanted to do something epic, I just didn’t have the build for gymnastics – I was too tall and too muscular.”

But that would all change when a young Austrian athlete was hit by an avalanche and Lisa’s mum Isobel did what many Kiwi mums would do… she invited him home. “I followed him around the world and we had lots of adventures,” Lisa says.

Those adventures involved running, walking, biking and paddling their way across thousands of miles of Europe, Scandinavia and Africa before taking on the ultimate challenge—an unassisted 250km crossing of the Libyan Desert, Lisa carrying 35kg of her own food, equipment and water.

When the relationship ended after becoming abusive, Lisa had lost her confidence and self-esteem. “I was lost, I didn’t know what I wanted… I wanted to keep having adventures, but I didn’t have anyone to have them with.”

So when she heard about the Marathon des Sables, a seven-day, 240km ultramarathon across the Sahara Desert described as the toughest foot race on earth, it was just the challenge she wanted to sink her teeth into.

“I came out in the top 10 and I was like, holy crap I’m not bad at the really long stuff! That started the ball rolling and I just wanted more and more of that,” she says.

And more of that she got, conquering some of the most gruelling challenges on earth. She learnt about pushing past barriers, overcoming obstacles, fighting back after injury and breaking goals into bite-sized pieces. “You learn resilience, that not everything goes your way and if you get knocked down, you have to get back up.

“You learn about persisting through the uncomfortable times.”

They were life lessons that were invaluable for Lisa when one Saturday morning, her mum had an aneurysm completely out of the blue.

Isobel was in and out of a coma for three weeks. When she awoke, she had severe brain damage; she couldn’t communicate and had no memory of who she was. According to doctors, there was no hope.

“She was in a little bit better than a vegetative state,. It was like the computer was on, but there was no software installed.”

Soon after changing hospitals, Isobel’s condition started to deteriorate. She was going downhill and she was heading there fast. That’s when the cogs started turning over for Lisa. “I started to think hang on, she was on oxygen, now she’s not and she’s getting worse.”

Having done a lot of endurance work at altitude, Lisa understood the ramifications of a lack of oxygen. She pointed out her mum’s symptoms to the doctors and her concerns were pushed aside.

When she suggested a sleep apnoea test, they said no. But Lisa was familiar with hurdles. “I went over the top of their heads with a private consultation! The test came back as severe sleep apnoea.”

Her mum’s brain wasn’t getting the oxygen it needed to heal. For athletes like Lisa, specialised oxygen tents help them adjust to low-oxygen conditions; Lisa came across the concept of hyperbaric oxygen therapy (HBOT); same concept, different application.

Used most famously for divers recovering from ‘the bends’, HBOT involves breathing concentrated oxygen in a pressurised chamber. The treatment has been known to dramatically and permanently improve symptoms of chronic traumatic brain injury (TBI) months or even years after the original head injury, among other ailments it is used for.

There are more than 60 years of clinical studies supporting its use and hundreds of hospitals around the world utilising it. In New Zealand, HBOT is used in Auckland and Christchurch, but only for gangrene, diabetic ulcers, burns and compression injuries, but not for brain injuries. Lisa was determined to get her mum on this treatment.

After three months in hospital, she finally won the battle to take Isobel home. Miraculously, she secured the use of a hyperbaric oxygen chamber and immediately started 1.5-hour sessions a day, five days a week. “After 33 sessions she started to wake up, respond and try to communicate!”

And just as soon as they started seeing results, the chamber was required for a contract and they lost access. But then Lisa never was one to give up! She mortgaged the house, got her own chamber and had it installed, and Isobel continued to improve, slowly, but surely.

Throughout the journey, Lisa studied like mad, everything from functional neurology and Nootropics, to epigenetics and functional genomics.

She changed her mum’s diet to essentially a keto diet, with high good fats and green veges, and put in place an eight-hour a day programme of training which changed constantly to work around neural fatigue.

Isobel had to learn everything she had once known from scratch; from how to chew food properly, to how to read and write.

After four years, Isobel is completely healed. Other than a slight limp, there is no sign of the brain damage she suffered. From not being expected to live out the month, Isobel has her full drivers’ license back! “At the time she couldn’t even driver her own wheelchair,” Lisa laughs.

“My brothers thought I was insane!”

Lisa has written about the journey. Relentless is the story about how Lisa refused to accept the words of the medical fraternity and instead decided that she was going to get her mother back or die trying. It covers the physical – the therapies, protocols and doctors she used – but also the mental – the attitude and mindset that is required to take on a fight this big. It’s available on the website below or in bookstores now.

“It will resonate with athletes, to those with medical challenges, to anyone who wants to understand high performance and how to get the best out of themselves,” she says.

“I want other people to learn that when everything looks bleak, sometimes there is hope, if you’re willing to put in the work.”


 

A charitable endeavour


Juliette Capaldi’s first love was always photography. Now after a battle with cancer, the local mother of one is turning the lens on a charity project close to her heart. She talks to Metropol about her passion project.

 

 

“My dad gave me a camera when I was 10 or 12, so photography was something that always inspired me,” Juliette says.

“Then I went away and did a million other things,” she laughs, “my degree, travelling, working overseas.”

A bit over 10 years ago and newly married, she was looking for something to sink her creative teeth into. “My husband said, ‘what do you really want to do?’ and I was like ‘be a photographer’. He said, ‘well just do it, I’ll support you 100 percent’”.

And in 2009 Etta Images was born… but the universe had another baby in store for Juliette and her husband Rob. “I got pregnant the first month I started the business!” she laughs.

Juliette had previously been involved with a charity photography project for the Make a Wish Foundation, where the photographers donated their time and the session fee went to Make a Wish.

“I think only three of us took it up, but I thought what an amazing way for photographers to be able to raise funds, why not try it myself?”

She had been helping with Ronald McDonald House (RMH), cooking meals with a friend so that was a natural fit for a charity. “They’re just so amazing at RMH with what they do; they’re the perfect charity,” she says.

So she launched plans for ‘Love and Mums’ – a project that would see her photograph 75 local mums and create a beautiful coffee table book from the images. She reduced her usual session fee of $99 to just $65 and the entire $65 would be donated
to RMH.

 

“I have a strong passion for getting mums in photographs with their children. So often they are behind the camera and often avoid it on purpose, worried about how they look.”

But again, the universe threw another curveball. In March this year, the 45-year-old was diagnosed with breast cancer. The cancer was large, she says, but it hadn’t spread to her nodes. It was picked up at her first screening as part of the nationwide programme for women over 45, so it was caught early. “I encourage all women to go. Even if you don’t like it, just go; it’s such an amazing service.”

The discovery of a second lump cemented her decision to get the full mastectomy. “I’ve got a boy who is nine, coming up 10, and I just wanted to survive for him,” she says.

 

 

Miraculously, only one session had to be rescheduled, with a heavily pregnant mum and her daughter, due to the number of tests Juliette had to undergo. “Luckily, we managed to reschedule a week later and baby waited!” she says.

One person did have to miss out because I was having a mastectomy two days before the shoot, but I was back shooting 10 days later to finish off the book!”

It’s not the first time cancer has touched her life. Juliette’s mother’s first husband died of cancer, when the youngest of her five half brothers and sisters was just three months old. Her grandmother died of cancer and, last March, her dad died of cancer
– something she still finds painful to talk about.

Now she’s moved her focus to a new project – ‘Love and Dads’. This time, the proceeds will support cancer research; same concept, this time with dads. “My best friend is going through breast cancer and a mum at my son’s school is going through it. So to be able to do something for the Breast Cancer Foundation feels really good.”

So if you’re wanting something special to make your relationship with any fathers in your life, get in touch. It’s all for an amazing cause.

To find out more and to book in a session for Love and Dads, visit www.ettaimages.co.nz/book and follow the Facebook page, www.facebook.com/JulietteCapaldiEttaImages.

 

 

Metropol has two copies of Love and Mums to give away to two very lucky readers. To enter, please head to our Facebook page and follow the instructions.